NJAFP research results in new Lupus Lecture Series for Primary Care
NJAFP and our research partner AxDev identified gaps through a systematic review of all available empirical research, analysis of patient conversations on MyLupusTeam, and observations from a patient focus group. From this data, NJAFP developed a lecture series on lupus designed specifically for primary care providers to close gaps in care. Click here to read more about gaps in lupus care and the patient experience.
We’re working with the Lupus Foundation chapter that covers PA, NJ, and DE, to provide toolkits of patient materials and connect you to their many patient support services. While the disease focus is lupus, lessons learned include workflows for any rare or less-common disease that require a lot of shared care with a specialist. We’ll also work on communication skills and patient self-management. Ideal for primary care residents, attendings and all primary care physicians and providers.
Why You Need To Know Lupus
Her symptoms first appeared in 2008 and she was diagnosed in 2013. Her first family doctor gave her antibiotics for crushing fatigue and said, “it will pass.” This family physician sent her to a rheumatologist who said she needed to see a different kind of doctor while pointing at his head. Two years later and in tears at her new family doctor’s office because of severe joint pain, a resident recognized the "butterfly rash" and asked if she had ever been tested for lupus. Her family doctor referred her to a rheumatologist he knew personally, and she was on her way to a diagnosis.
The Lupus Foundation can be the service arm of your practice for patients with lupus. Click here for top resources from the Philadelphia Tri-State Chapter of the Lupus Foundation of America.