NJAFP research results in new Lupus Lecture Series for Primary Care

NJAFP and our research partner AxDev identified gaps through a systematic review of all available empirical research, analysis of patient conversations on MyLupusTeam, and observations from a patient focus group. From this data, NJAFP developed a lecture series on lupus designed specifically for primary care providers to close gaps in care.

We’re working with the Lupus Foundation chapter that covers PA, NJ, and DE, to provide toolkits of patient materials and connect you to their many patient support services. While the disease focus is lupus, lessons learned include workflows for any rare or less-common disease that require a lot of shared care with a specialist. We’ll also work on communication skills and patient self-management. Ideal for primary care residents, attendings and all primary care physicians and providers.

Why You Need To Know Lupus

Her symptoms first appeared in 2008 and she was diagnosed in 2013. Her first family doctor gave her antibiotics for crushing fatigue and said, “it will pass.” This family physician sent her to a rheumatologist who said she needed to see a different kind of doctor while pointing at his head. Two years later and in tears at her new family doctor’s office because of severe joint pain, a resident recognized the "butterfly rash" and asked if she had ever been tested for lupus. Her family doctor referred her to a rheumatologist he knew personally, and she was on her way to a diagnosis.

Gaps & the Patient Experience

(Click to read more)

Lupus Lecture Series for Primary Care

5 hours of FREE CME

Program Schedule

Kick-off
Noon-1pm
Monday, Oct. 4 | Wednesday, Oct. 6 | Thursday, Oct. 14

Unmasking Lupus 2.0

  • Describe the pathophysiology of SLE and recognize how it informs management
  • Identify criteria for diagnosis and assessment of SLE
  • Identify traditional and emerging management approaches for SLE, including flare recognition, prevention, and treatment
  • Monitor and manage SLE disease activity, complications, and comorbidities
  • Overcome communication barriers to improve adherence and health outcomes in SLE

Session 1
Noon-2pm Friday, Oct. 29

A Diagnosis Story (Subtitle: I’m not crazy)

The Primary Care Role

Shared Care & Patient Self-Management

  • Identify the presenting signs and type 1 symptoms of lupus (rashes, arthritis, cytopenia) to trigger an early referral to a rheumatologist and aid in early diagnosis
  • Develop patient-centered lupus plans to monitor disease activity, therapy, risk, and complications (including family planning, vaccination, cardiovascular risks) and adjust as needed
  • Develop and implement shared care plans with sub-specialists including details on primary care v. specialist responsibilities and when to refer
  • Implement and reinforce patient education and patient self-management strategies specific to lupus: education, resources, lifestyle, and disease self-management (including adherence with therapy

Session 2
Noon-2pm Friday, Nov. 19

Communications skill training: communicating empathy, building trust

  • Differential diagnosis of fatigue in pts. with SLE
  • Non-pharmacologic management of type 2 symptoms
  • Rapid review of empathy and trust building
  • Rapid review of common communication pitfalls
  • Critique of demonstration scenario
  • Principles of shared decision making
  • discussion of recent research about shared decision making and chronic illness

 

Sponsored by NJAFP as part of the NJAFP Residency Program Collaborative’s Lupus Project in collaboration with the Lupus Foundation of America, Philadelphia Tri-State Chapter